All you need is one person: the birth of a patient community (and what to expect from this book) / Fiona Lowenstein -- It wasn't the beans and rice: fighting biased health care systems with community care / Karla Monterroso -- Standing tall (and sitting right back down): living with Dysautonomia / Heather Hogan -- COVID can't be outpaced: learning radical rest and pacing / Pato Hebert -- With disability, comes rights: navigating the financial impacts of COVID-19 / Letícia Soares, Alison Sbrana, and Karyn Bishof -- Closer than they seem: finding a caregiver / Chimére L. Smith -- The obstacle course: obtaining a diagnosis / Rachel Robles, Dona Kim Murphey, MD, PhD, and David Putrino, PhD -- Down in the well, we will mourn and sing: surviving mental illness / Morgan Stephens -- Am I making any sense?: navigating cognitive dysfunction / Terri L. Wilder, MSW, and Yochai Re'em, MD -- Not the only one: talking about menstrual issues / Monique Jackson -- The search for community: finding peer-to-peer support / Padma Priya -- Knowledge Is power: navigating long COVID research / Lisa McCorkell -- Such a powerful love: disabled and chronically ill people and our long fight for justice / JD Davids and Naina Khanna -- Afterword / Akiko Iwasaki, PhD -- Glossary -- Notes -- Acknowledgments -- Resources -- Index -- About the contributors -- About the editor.
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